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Dear PHACE family and friends,
 
We are excited that the 2014 PHACE Family Conference, PHACEing the Future is only 3 months away!  The PHACE Syndrome Community is excited to be hosting our first family conference in Milwaukee, with support of the great team at Children’s Hospital of Wisconsin.  We would love to have you there to meet/network with other PHACE families learn more about PHACE and what doctors have learned in the past two years.
 
Please read the information below and click on the link to register for the PHACE Family Conference.
 
What: 2014 PHACE Family Conference
When: June 19-20, 2014
Where: Country Springs Hotel, Water Park & Conference Center, 2810 Golf Road, Pewaukee, WI 53072 (suburb of Milwaukee)
Registration Fee: $100 per family*
 
*Registration fee includes all conference materials, childcare for children ages 2-12, and meals during the conference (lunch and dinner on 6/19 and lunch on 6/20). Limited registration waivers are available upon request - please contact info@phacesyndromecommunity.org to request more information.
 
The Country Springs Hotel has a wonderful indoor water park that is fun for kids and adults alike! The PHACE families had a great time at the water park during the 2012 conference.
 
Please contact the hotel directly at (800) 247-6640 or (262) 547-0201, to reserve your hotel rooms and mention that you are attending the PHACE conference. The per-night rate that we have negotiated for a room is $89 without waterpark access and $109 with waterpark access.
 
Some of the topics that we expect to cover over the two-day conference include (topics are subject to change):
 

  • Updates on PHACE Syndrome - news on research findings from leading PHACE experts
  • Neurological issues and PHACE Syndrome
  • PHACE syndrome and headaches
  • How to manage social media and privacy in the technology age
  • Coordination of care - how to best manage your child's care when they are seeing so many specialists
  • Family panel - sharing and experience from PHACE parents and/or older PHACE patients
  • Updates on PHACE registry
  • PHACE Syndrome Community - how can you get involved in our community of PHACE families

 
Childcare will be provided for children ages 2-12 during the conference sessions only.
 
Family Fun Day: We would love for families to stay and join the PHACE Syndrome Community on Saturday, June 21st for a family fun day. One of the biggest pieces of feedback we have received from parents is that they most enjoy having time to meet and get to know other PHACE families. Stay tuned for more information about the social activities that we will be having for our PHACE families! Room rates at the Country Springs Hotel for the nights of June 20 and 21 are $119 (without waterpark access) and $129 with waterpark access.
 
Simply click the link below to register for the PHACE conference today!
https://www.surveymonkey.com/s/LW7VG68
 
The registration deadline for the conference is June 6th. However, rooms must be booked by May 15th in order to get the room rates listed above. After May 15th, room rates may be higher.
 
We look forward to seeing you at the 2014 PHACE Family Conference! Please contact us at info@phacesyndromecommunity.org with any questions.
 
See you in June!
 
The PHACE Syndrome Community Conference Committee
Adriane Baylis, Jennifer Meints, Jill Salas, Janet Ziffer
http://www.phacesyndromecommunity.org/

 

Copyright © 2014 PHACE Syndrome Community, All rights reserved.


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