What can we say after this difficult year except we hope that all of you are healthy and safe. We also hope that all your advocacy efforts haven’t been squelched by the Covid-19 virus.
We’d like to know what you’ve been up to so we can share and promote your cause and activities through the USA Patient Network newsletter, Facebook and Twitter pages. Please email us at USAPatientNetwork@gmail.com
In 2020 we became a 501(c)(3) Non Profit!
Update on FDA Advisory Hearings on COVID-19 Vaccines:
Board members Kim Witczak, Dru West, and Marie Garlock all spoke at the FDA hearings on behalf of the USA Patient Network about Covid vaccines, voicing our concerns that studies on the vaccines need to continue and that those who are vaccinated need to be followed longer than 2 months and given clear instructions on how to report adverse reactions. Links to the videos of our public comments:
December 10 Hearing on Pfizer Vaccine
Kim Witczak speaking: https://youtu.be/-fj5k-RgNKw
Dru West speaking: https://youtu.be/SsKyzuTUMMk
Dec 17 Hearing on Moderna Vaccine
Marie Garlock speaking: https://youtu.be/BunVNPtA3x4
We are now a member of MDIC (Medical Device Innovations Consortium) and they have asked us if any of our patient advocates would be interested in reviewing their next patient Discussion Tool for Covid-19.
MDIC recently released their Patient Discussion Tools for COVID-19 and are working on creating another version to release next year. They'd love to get input from patient partners in the USA Patient Network on these tools and provide feedback from what patients do/don’t find helpful from these. Contact Dru West at USApatientnetwork@gmail.com if you want to help.
We want to hear from you!
Our very best to you all,
USA Patient Board