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Special Kids: Newsletter No 33
If there was a Magic Wand, would you use it?
If there was a magic wand, would you use it to cure your child?

I ask the question because the study that wonderbaby.org compiled for our feature article 'Would you cure your child’s disability, if you could?’ came back with surprisingly close statistics – 57% YES and 43% NO. You might have imagined it to go the same way as I had, with a unanimous YES. But like Brexit, Donald Trump and all the other crazy things that have gone down in 2016, you can take nothing for granted in this world we live in. 

Young people with disabilities were asked for their views on the magic wand and were sceptical about the idea of a cure. It wasn’t an easy answer and quite a few people from the study would prefer to stay visually impaired, for example. Blindness is an important part of their identity, and they feel pride for their community and the advocacy work that they are doing. Their disability has given them purpose and a much needed voice.

For me, I’m on the '57% YES' side of things. Maybe its because I’m the mother of a disabled child and not the person with the disability but I wouldn’t skip a heartbeat in whooshing that magic wand over my severely compromised 14 year old boy. In Lucas’ case, disability hasn’t carved his life in a positive way. He struggles terribly with seizures, painful joints and headaches. He lives with a lot of pain - daily, chronic pain.
Pain Management for Children with Cerebral Palsy. 
Who wouldn’t want to wave a wand over that?

I don’t want the world to be rid of neurodiversity, not at all. It’s the suffering I can’t stomach. I wish it wasn’t always so tough for our kids,
that there was more magic in their lives.

Nina Zylstra
Editor of Special Kids
info@specialkids.co.za
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