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Living Kidney Donors Network is a non-profit organization offering help to those in need of a kidney transplant in their pursuit of living donation. LKDN also helps those who are interested in being a living kidney donor.
 
October 2016

Living Kidney Donors Network


In This Issue:

  • Using Social Media/Facebook for your Kidney Kampaign
  • Articles of Interest
  • Highlighting Donate Life license plates on our Facebook page
Using Social Media i.e. Facebook In Your Search for a Living Kidney Donor

Medical professionals agree that for those in need of a kidney transplant a kidney from a living donor is their best option. When pursuing a living donor the goal is to let many people know about your situation. One of the easiest ways of reaching large numbers of people with your message is to use social media/Facebook.

LKDN is developing a "How To Use Social Media/Facebook" handbook for your Kidney Kampaign. It will include a section: "How To Respond To a Potential Kidney Donor." I've been told by many that this is a difficult conversation. 

The Canadian Society of Transplantation developed a position paper on using social media to promote you need. To read this report click here.

Some hospitals will not accept someone if they learn that you met online and don't have a long standing relationship. The handbook will provide you with information on how to discuss this with your transplant center.

I would like to include the experience that others have had. If you have some thoughts about the above or would like to share your experience, whether you are a recipient, donor, advocate or in need of a kidney transplant, please email me by clicking here or at: harvey@LKDN.or

Articles of Interest

Our Facebook page lit up when I posted the story about a 26 year old who regrets donating a kidney when he was 18. To read the story click here. Make sure you read some of the comments at the bottom of the story. I also posted another article written by someone who was proud to donate. Click here to read that story.

Here's a new and somewhat controversial video by Donate Life America targeting millennials to register to be organ and tissue donors. To see the film click here. If you would like to share your thoughts about the film click here

Here's another story about 3-D printed kidneys. Could technology fill the void before altruism? Click here to read the story.

Yard signs are popping up everywhere and their ability to reach a large audience is multiplied when a local TV station highlights the story. Click here to see the sign and watch the local TV story.

A successful Kickstarter program for a book written by kidney donor Ari Sytner, "100 Questions I asked Before Donating My Kidney" was supported by LKDN. To learn more about this book, click here.


Highlighting Donate Life License Plates on our Facebook Page

Have you noticed the new Facebook page photos that we are prominently featuring? Click here to go to our Facebook page, you'll see Donate Life license plates. If you have a Donate Life license plate and would like to see it on our Facebook page email a jpg photo and your story by clicking here or email to: pic@LKDN.org We are also highlighting stories about those who are in need of a kidney transplant and photos of donors and recipients post transplant. Please share these life saving stories with us.

Please Share this Newsletter

If you know someone who could benefit from reading this newsletter, please forward it to them. You could share it with your dialysis or transplant social worker so they could pass it on to their patients.

To view previous newsletters Click Here

Harvey Mysel

I’m a two time kidney transplant recipient and founder of the non-profit organization Living Kidney Donors Network. I started LKDN after my first kidney transplant in 2007; my wife Amy was my donor. I’d known about my kidney ailment, PKD a genetic condition, for 20 years. One and a half years after my transplant, I contracted a virus that attacks the kidney. I  was told in January 2012  I needed another transplant. I was very fortunate to receive a kidney from Stephen Liegghio in August 2012. To learn more about Harvey Mysel: Click Here
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Our mailing address is:
Living Kidney Donors Network 
1001 Green Bay Rd. #178
Winnetka, IL 60093