We are excited by the continued growth and tremendous opportunities at Neuroworx as this simply means that we can care for and serve more people! In this e-newsletter, you will learn about:
Our recent Remarkable Journey Gala
Our Plans for the New Building and How You Can Help
Our Patient Spotlight - Stephen Merrill
Our Latest Piece of Equipment
Our Newest Staff
Please feel free to share/forward this e-newsletter to others who may have interest in our Journey.
Thank you for your support and Happy Holidays!
Dale Hull, MD, MPA Jan Black, MS, PT
Co-Founder & Executive Director Co-Founder & Clinic Director
Neuroworx - Where Remarkable Happens
September 13, 2013
Nearly 200 guests, including local community and business leaders and the evenings' honorees, attended the
1st Annual Remarkable Journey Gala
A Remarkable Celebration
Friday the 13th of September started wet and gloomy, but a pause in the rain made way for the sunshine and a warm welcome for the nearly two hundred guests in attendance at our Inaugural Gala generously hosted by Workers Compensation Fund (WCF) and Event Chairman, WCF CEO, Ray Pickup.
The Remarkable Journey reception was lively as guests enjoyed savory hors d'oeuvres and sweet-flavored Italian sodas before entering the dining hall. A small contingency of the Voodoo Orchestra played a brief prelude of the evening’s entertainment as guests entered the dining area.
Master of Ceremonies and Neuroworx Board Chairman, Christian Deputy, welcomed everyone and shared a brief music video highlighting Neuroworx to begin the celebration. This was followed by remarks by Dr. Dale Hull and Jan Black who expressed their appreciation for the ongoing support of so many over the years. A specially produced video shared the Remarkable Journeys of several of the Extraordinary People who have been cared for at Neuroworx.
The main focus of the evening was the presentation of the Neuroworx Pushing For More award to five organizations that have made an extraordinary difference to our mission and lives of those affected by paralysis. The Craig H. Neilsen Foundation, Michel Foundation, Workers Compensation Fund, The Larry H. & Gail Miller Family Foundation, and the Sorenson Legacy Foundation were honored and received beautifully crafted crystal awards in recognition of their generosity.
Mr. Joe Sorenson, representing the award recipients, paid tribute to those who work so hard to overcome the challenges of paralysis. Mr. Ray Pickup remarked on the positive effect of Neuroworx on the lives of so many. He announced WCF’s commitment to assist with the building of a new Neuroworx facility in 2014.
The party then moved outdoors to the entertainment tent where the upbeat music of the Voodoo Orchestra motivated many of the guests to dance in the cool night air.
It was a wonderful evening of celebration for the journey of Neuroworx as an organization and for the remarkable journeys of those whose lives are devastated by paralysis yet find hope and progress through the generosity of others.
Neuroworx Clinical Staff
From Left to Right: Ashley Beyeler, Jen Gebhardt, Shana Black, Lance Deeter, Dr. Dale Hull, Matt Hansen, Jan Black, Mike Erickson, Kari Walker, Rick Reigle, Kate McDermott and Amy Tobler
2013Pushing For MoreAward Recipients
The Neuroworx Pushing For More Award recognizes individuals and organizations who have made significant contributions to the Neuroworx mission.
Sorenson Legacy Foundation ( From L to R: Dr. Dale Hull, Jan Black, Joseph Sorenson and Christian Deputy)
The Sorenson Legacy Foundation has been a generous and consistent supporter of the Neuroworx mission since the beginning. Nearly every person receiving care at Neuroworx has benefited from its contributions.
Workers Compensation Fund (From L to R: Dr. Dale Hull, Jan Black, Dennis Lloyd, Ray Pickup and Christian Deputy)
Workers Compensation Fund is a wonderful community partner who understands and supports our mission in many ways. They were the sponsor of the Remarkable Journey Gala and has pledged to help Neuroworx expand its physical capability.
The Larry H. & Gail Miller Family Foundation (From L to R: Dr. Dale Hull, Jan Black, Lane Summerhays and Christian Deputy)
The Larry H. & Gail Miller Family Foundation's generous gift will build the gymnasium in our new facility that will help so many more with paralysis as they work through their rehabilitation. It will also be a place for individuals to participate in recreational and competitive adaptive sports.
Michel Foundation (From L to R: Dr. Dale Hull, Jan Black, Shaun Michel and Christian Deputy)
Shaun Michel and his family have been unwavering advocates of Neuroworx and its mission. They have raised funds, donated funds and provided two apartments for individuals to stay in while receiving care at Neuroworx.
Craig H. Neilsen Foundation (From L to R: Dr. Dale Hull, Jan Black, Trish Oba, Kim Cerise and Christian Deputy)
The Craig H. Neilsen Foundation is dedicated to supporting cutting-edge research to find a cure for spinal cord injuries and disease. They also fund innovative rehabilitation programs throughout the United States providing direct care for those afflicted by such conditions. The Neilsen Foundation's support has been critical to moving Neuroworx forward.
With Special Appreciation
We would like to thank Worker's Compensation Fund for sponsoring our wonderful evening and for providing their building to hold the event.
We recognize and appreciate O.C. Tanner for their generous contribution of the beautiful custom awards for the evening.
We are also grateful to Nothing Bundt Cakes for their generous contribution of the night's event favor.
The New Neuroworx
It's official. Plans are currently underway to build a new facility. The consistent growth we are experiencing has pushed the limits of our current physical facilities. We need more room, more staff, and more equipment to serve more people!
Workers Compensation Fund has generously offered to work with us in planning and constructing a new larger and enhanced facility in Sandy, Utah. The Sorenson Legacy Foundation, the Larry H. and Gail Miller Family Foundation, and the Michel Foundation have all pledged considerable resources to get the new facility moving forward.
Although we don’t have everything we need yet, this is an incredible opportunity to work with our community partners and you to improve paralysis rehabilitation opportunities for those in our area.
Most people know about Black Friday and Cyber Monday,
but now it's time for Giving Tuesday!
Giving Tuesday is National Giving Day in America--marking the opening day for the giving season. It's a day for thinking of others and giving to your favorite community cause. Here's a recent Deseret Newsarticle that encourages you to embrace Giving Tuesday.
We hope you'll do just that.
Many of you recently received our Remarkable Journey Annual Campaign letter. We ask you to follow-up with your planned donation in the spirit of Giving Tuesday!
If you did not receive our letter, we invite you to join us for Giving Tuesday by donating to our building fund.We simply cannot attempt such an undertaking without your support and we warmly thank you in advance.
Oh, and while you're at it, take an "unselfie" and be sure to tag Neuroworx in your photo:
Before my accident, I had my life all figured out. I was headed for Buenos Aires, Argentina to serve a two-year mission and then retun home to finish my undergraduate degree in statistics. Everything changed for me in a split second when a routine outing to a gymnastics facility became anything but and I fractured my C5 vertebrae, resulting in chest-down paralysis. All my plans went on hold--indefinitely. It was a time of uncertainty and extreme difficulty. After an exhaustive three-month hospitalization, I returned to my family home in Arizona to search for answers.
In order to regain a measure of independence and reclaim my future, I needed a specialized facility dedicated to providing long-term, high-quality physical therapy. After trying several options, my family realized that such a place wasn't readily available. At that point, we turned to the internet and found Neuroworx. It was apparent that I found what I desperately needed. We decided to commit to the Neuroworx program and move up to Utah. That was a pivotal decision for my recovery.
I've now been drinking the Neuroworx Kool-Aid for a year and a half to the tune of increased strength and function that previous health officials never would have predicted. A monumental step for me came last winter, when I was able to leave my power wheelchair to gather dust and push myself independently in a new manual chair. I've also been able to regain the skills necessary to move to an apartment in Provo, where I continue my schooling.
My recovery is by no means complete, but the invaluable help from Neuroworx has given me my future back. It's a one-of-a-kind facility where professional therapy skill is combined with compassionate service and where hope abounds for all--no matter the physical situation.
From left to right: Dr. Dale Hull, Congressman Jim Matheson, Jan Black
On August 28th Jim Matheson, United States Congressman representing the 4th Congressional District of Utah, visited Neuroworx in response to an invitation by The Christopher & Dana Reeve Foundation. He was impressed by his visit, commenting:
" I learned a great deal today. The impact a spinal cord injury has on an individual, their family, and the community is significant."
"I sit on the Health sub-committee, so I can appreciate the 'one-size-fits-all' problem that restricted outpatient insurance benefits cause for people with spinal cord injuries. Neuroworx is doing wonderful things. Thank you for your efforts."
Dr. Dale Hull shared that the 2012 Utah Legislature recently passed HB400 which provides funds for the rehabilitation of qualified individuals with traumatic brain and spinal cord injuries. Utah is the only state in the nation currently providing funds directly for rehabilitation.
Greg Bell, then Lieutenant Governor of Utah, visited Neuroworx on September 11, 2013.
LOKOMAT ROBOTIC AMBULATOR
Neuroworx was able to obtain the Lokomat in January of 2013 through a $350,000 grant from the Sorenson Legacy Foundation of Salt Lake City.
The Lokomat is a device that uses software directed robotic leg guides to create a perfect gait pattern for individuals with various degrees of paralysis and neurological difficulties.
The equipment is very sophisticated and allows a trained therapist to adjust the guidance force to create a customized treatment for each individual. The therapeutic concept of the Lokomat is to present the nervous system with the correct patterns repetitively to assist in restoring normal movement. The model of Lokomat Neuroworx uses is the V6 and it is currently the only one its kind west of Denver.
In July of 2013, with an additional $100,000 Sorenson Legacy grant, Neuroworx was able to add a set of pediatric sized robot legs to the Lokomat. This allows children as young as two years old, with conditions such as cerebral palsy, to spend time with this specialized gait training.
According to Rick Reigle, a Neuroworx pediatric physical therapist, almost all of the children participating have shown significant improvement after a ten week treatment schedule of an hour of Lokomat time, three times per week. The next closest pediatric equipped Lokomat is Oklahoma or Michigan.
The Lokomat is now scheduled every hour of every day from 10:00 am to 4:00 pm in 45 minute intervals!
Rick Reigle is originally from Wisconsin and proudly claims to be a “born and raised a Cheesehead!” After 18 years he relocated to the beautiful island paradise of Oahu, Hawaii. He spent 5 semesters at BYU-Hawaii attempting numerous times to study on the beach, but was never successful.
Next he moved to Utah to attend the University of Utah. He graduated with his Bachelor’s degree in 2007 and then went on to graduate school to get his Doctorate of Physical Therapy. He graduated in May 2013. Rick was a student-intern at Neuroworx in the spring of 2013 and was hired in July as our pediatric therapist.
In his spare time he LOVES to go ice fishing! He also recently got engaged!
Kate graduated in August 2013 with a Doctorate in Physical Therapy degree from Simmons College in Boston, MA. She also holds a Bachelors of Science in Exercise Science degree.
Relocating from the New England area, Kate first came to Neuroworx last May as a student and completed a 15-week internship. Initially with a background and interest primarily in treating sports/dance injuries, she quickly realized that neurorehab is really where her passion lies.
She was hired on as a member of the Neuroworx team last August. She is currently involved in the pediatric program on Monday and adult patient care throughout the week.
She was a competitive figure skater for many years and ranked nationally with her partner in ice dance. She enjoys all kinds of physical activity including hiking, running and downhill skiing.
Regina began her career in the nonprofit sector in 1990 serving two administrations in the Governor’s Office of Utah. She worked in Media Relations under Governor Norman H. Bangerter and Constituent Services under Governor Michael O. Leavitt.
She later spent thirteen years as a presenter and fundraiser followed by receiving her Master of Public Administration degree from Brigham Young University in 2012. Prior to being hired as the Development Director at Neuroworx in August, she served as the Executive Director of World Joy in Bountiful, Utah for three years.
Regina has a passion for serving and is excited to grow the outreach of the Neuroworx organization. Resources are integral to any charitable mission and she thinks, along with Mr. John D. Rockefeller, that you “never … need to apologize for asking someone to give to a worthy [cause].”