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OPAAL e-bulletin: August 2016
Welcome to the OPAAL e-bulletin for members

OPAAL Update

OPAAL Members’ Day and AGM
This year OPAAL Members’ Day takes place at Mary Ward House, London on Tuesday 20th September 2016. We have some really interesting speakers lined up: Sanchita Hosili, Deputy Director of BIHR will be telling us about the Human Rights periodic review, Julie Ridley will share the findings from the University of Birmingham’s recent research into commissioning Care Act Advocacy, Shaben Begum, Director of our sister organisation in Scotland SIAA will be bringing us up to date with developments and Louise Hughes Programme Manager for the Golden Thread programme will bring us up to speed with developments in advocacy in Wales. It’s not too late to book your place. Contact
Older People’s Advocacy Manifesto
We’d like to remind you that we recently launched our Older People’s Advocacy Manifesto 2016. This Manifesto is a call to action to ensure older people’s right to access advocacy is accounted for in policy and legislation, and older people are included in consultations and policy development.  We encourage you to share the Manifesto via your own networks, and if you use social media we also ask that you share this alongside the #advocacyworks hashtag to help us to keep the conversation going about advocacy for older people (our twitter handle is @OPAALUK).
OPAAL responds to consultations
On Members’ behalf OPAAL has responded to the following: Department of Health’s Carers Strategy consultation, now closed; Department for Communities and Local Government consultation on Business Rates retention – this is consultation on responsibility for Attendance Allowance to be moved to LA’s (page 29) and is vitally important, consultation closes on Monday 26 September 2016; NICE (National Institute for Health and Care Excellence) Community Engagement: improving health and wellbeing now closed.
Consultation responses to be uploaded to OPAAL website
We realise that with so many calls on your time OPAAL members may struggle to develop responses to the proliferation of public consultations. We intend therefore to start uploading the responses we’ve prepared to the OPAAL website. You can then use these to inform your own response. We aim to begin this practice for any open consultations we’ve already responded to from September.
Cancer, Older People and Advocacy programme
We’ve been developing sustainability plans for the future of the COPA programme with delivery, parallel and strategic partners. This includes a potential widening of the programme to include some delivery in Scotland and extended delivery in both England and Wales. Kath Parson, OPAAL CEO, has already met with a number of Scottish older people’s advocacy providers thanks to the Scottish Independent Advocacy Alliance (SIAA) and plans are afoot to meet some Welsh organisations. Watch this space for news of future developments.
COPA blog
Work has drawn to a close with the consultant who was exploring how we currently tag our blog posts, particularly advocacy stories, to ensure we make best use of our story materials.  We’re currently re-tagging stories to make for a more effective read across the whole blog. Remember you can make use of the advocacy stories on the blog in your own press and publicity work to help promote advocacy.
Older People’s Cancer Voices
We have recently filmed two complex case stories and these are in the editing suite awaiting their release.  This has flagged up lots of interesting issues, some ethical, relating to filming live/open cases at the end of life, about respecting boundaries and some about involving family members and friends in storytelling and filming.  All of this work is increasing OPAAL’s understanding of storytelling and issues affecting older people affected by cancer.
Guardian Charity Awards
OPAAL has applied to this year’s Guardian Charity Awards. If successful we’ll be able to raise the profile of older people’s advocacy still further. Preliminary judging takes place in early September and winning charities will be announced on December 13th. Wish us luck!
GSK Impact Awards
The awards are designed to recognise and reward charities that are doing excellent work to improve people’s health. They are funded by GlaxoSmithKline and managed in partnership with The King’s Fund. Up to 20 awards will be made ranging from £3,000 to £40,000 plus free training valued at up to £6,000. Organisations will also have a film made, receive help with press and publicity and be given a set of promotional materials. OPAAL has applied this year and if successful aims to provide additional support to members, especially those involved in our Partnership Development Hub. Your organisation may be eligible to apply too. For more information click here. The deadline is 21st September.
OPAAL Partnership Development Hub
Our next scheduled Hub meeting takes place on Thursday 8th December at Voluntary Action Islington, London from 11am until 4pm. As usual there will be a free training session from 11am until 12.30pm preceding the main meeting. Whilst the topic for the training session has still to be confirmed, if you’re interested in attending a Hub meeting you can contact Marie for more information.
OPAAL on Twitter
Some of you will have spotted that we’ve been using a hashtag #advocacyworks on Twitter; we try to retweet and share our members posts when they use this hashtag, so if you’ve something to share with a wider community we’d encourage you to use the #advocacyworks tag and we’ll help promote your work in our networks. 

In The News

National Advocacy Awards
Kate Mercer Training have launched the National Advocacy Awards to recognise excellence in advocacy, congratulate exceptional contributions to advocacy and they’re open to anyone involved in the advocacy sector. Nominations are open until Sept 14th for:
Outstanding advocate; Outstanding service; Best co-production; Outstanding contribution to equality and diversity; Best support of advocacy. To find out more go to Every nomination will be recognised with a Certificate of Nomination. The best 4 entries will be shortlisted and the winner announced at the Award Ceremony October 12th 2016 in Birmingham. Click here to book tickets for the event.
Be a force for change: National Advocacy Conference 2016
This year’s conference takes place at Birmingham NEC on Thursday October 13th. Confirmed speakers will be Dr Simon Duffy – Centre for Welfare Reform; Baroness Finlay – Chair of the National Mental Capacity Forum; Steve Broach – Barrister, Monckton Chambers; Lucy Watts MBE – young person who has been awarded an MBE in recognition for her work with young people with disabilities, life limiting or complex conditions. You’ll find more information and can book your place here
Law Commission: consultation on the law of mental capacity and deprivation of liberty
An Easy Read version and a Welsh language version of the Law Commission’s Interim Policy Statement have been published on its website. You can download them via this link:
A final report with recommendations and a draft Bill is due to be published in December 2016.  
Alzheimer’s Society Campaign: Unfair charging
Right now, one in five care homes are being charged by their GP practices. They’re unfairly charging care homes – and the people with dementia who pay care home fees – for services that should be free on the NHS. Many GPs don't charge extra for the services they provide, but in the worst cases, they are charging care homes up to £36,000 a year – when they shouldn’t cost a penny. In addition, people with dementia are often forced to wait months for vital secondary care like physiotherapy or mental health services. The NHS Constitution needs to be enforced. People with dementia must have equal, free access to NHS services. Services that they are entitled to and deserve. You can sign the Alzheimer’s Society petition here
NCVO: Implications of Brexit for the voluntary sector
NCVO has published a short presentation on the potential impact of Brexit and the implications for the voluntary sector. You can access the presentation here
New accessible information standards now in force
The Accessible Information Standard tells organisations how they should make sure that disabled patients receive information in formats that they can understand and receive appropriate support to help them to communicate. By the end of July 2016 all organisations that provide NHS or publicly funded adult social care must have fully implemented and conform to the Accessible information Standard
DH: Our Commitment to you for end of life care
The Government Response to the Review of Choice in End of Life Care was published in July. The Review, which was focused on adults, demonstrated clearly that high quality care and personalised care based on people’s choices and preferences are inseparable. People want to be given the opportunity to make choices relating to their end of life care, but they want their choices to be real choices, based on high quality end of life care services being available in all areas of the country and in all settings.
Personal Independence Payment (PIP) assessment: second independent review call for evidence
This call for evidence is aimed at organisations and individuals who have information that is relevant to how the PIP assessment is operating both for new claims and Disability Living Allowance (DLA) reassessment claims. Deadline 15/09/16
13th Programme of Law Reform consultation now open
The Law Commission has opened the consultation for its 13th Programme of law reform. The responses received will inform the majority of the Law Commission’s work from 2017 to 2020. They are asking for your help to identify areas of the substantive law of England and Wales that need reform, and to prioritise those reforms. The Commission is also suggesting some potential projects that could form part of the Programme, and they would like to hear your views on these, and whether you think they should form part of their work in the next few years. Consultation ends 31 October 2016.


Patients as partners
This Kings Fund publication looks at building collaborative relationships among professionals, patients, carers and communities. The Kings Fund also want to hear your stories of collaboration, reflections on the guide and what you would find useful to help your collaborative relationships to grow.  
CQC- Better care in my hands: a review of how people are involved in their care
People’s right to being involved in their own care is enshrined in law in the fundamental standards of care. It is an essential part of person-centred care and leads to better and often more cost effective outcomes. This report is based on newly analysed evidence from CQC national reports and inspection findings, as well as national patient surveys and a literature review. It identifies what enables people and their families to work in partnership with health and social care staff and illustrates this with good practice examples from CQC inspection findings.
SCIE: Using the Mental Capacity Act
SCIE has launched this video as a Mental Capacity Act resource.
Care Act for Carers: one year on
Carers Trust has published its findings on the impact of the Care Act on carers one year after implementation. What they found is a mixed picture. There are beacons of good practice, but there is plenty of darkness too. For many of the carers who responded to Carers Trust call for evidence the response was stark, no, the Act had made no difference. Indeed, for many it was news to them that there were new rights. You can read the report here
NDTi "People's Voice" Programme
Thanks to funding from the Esmée Fairbairn Foundation, a number of resources were co-produced with people who access services to help and support change-makers within the health and social care sector. OPAAL and some of her members contributed to the co-production of these materials. David Brindle, Chair of NDTi, said that the three sets of resources would have a "significant impact in ensuring that the voices of people who use health and social care services are not only listened to but are acted upon". The materials comprise; A standardised Advocacy Outcomes Framework, A toolkit for Co-production in Mental Health and A guide document exploring what works in supporting carers through the Care Act.
Dementia Evidence Toolkit
The Dementia Evidence Toolkit is for commissioners, care providers, people working in health and social care and people with dementia and their families. The toolkit will help those planning and shaping services and treatments for people with dementia and their carers make informed decisions about which services and treatments to provide and how much they cost. The toolkit has two resources: A searchable database with information on over 1433 research studies on interventions for people living with dementia and their carers; Summaries of the research findings for some of the main care and treatment interventions.
EHRC: Healing a Divided Britain
The Equality and Human Rights Commission’s in-depth analysis of existing evidence outlines a worrying picture of race inequality. EHRC’s animation highlights five key areas where the need for improvement is essential. These are: Employment, Education, Crime, Living standards and Health and care. The full report can be accessed here
Dementia Atlas: Putting a focus on dementia
In England, 676,000 people live with dementia, a figure which will soar over the next forty years. This map sets out what we currently know about dementia care and support across the country, based on available national data. The data is grouped in themes based on NHS England’s well dementia pathway which serves as a framework to ensure people with dementia have a better experience of health and social care support from diagnosis through to end of life.
Building bridges, breaking barriers
CQC has published Building bridges, breaking barriers looking at how well care for older people is integrated across health and social care, as well as the impact on older people who use services and their families and carers.

Worth a Look

NESTA: Helping in hospitals – a guide to high impact volunteering in hospitals
With the support of the Cabinet Office and the DH, Nesta worked with 10 hospital trusts from 2014 to 2016 to help them be more strategic with volunteering services, by creating impact roles that contribute to better patient experience, wellbeing and care and measuring impact more systematically. The evidence generated through the programme has shown promising results related to improvements in patient experience, mood, anxiety levels, nutrition and hydration, and releasing nurse time to care. The full evaluation results, written by The Social Innovation Partnership (TSIP), can be found here. Helping in Hospitals - a guide to high impact volunteering in hospitals’  explains how the projects achieved these outcomes and navigated their experiences.
In Kind Direct
In Kind Direct is a Prince of Wales Charity set up to support charities and not for profit organisations with donated goods. Goods range from toiletries, clothes, toys, cleaning products and a range of other items that can be used to: Give to people you support; Clean and maintain your facilities; Fill goody bags for fundraising events. Registration is free; you pay a small handling charge for the service, which contributes to their running costs and includes delivery. Typically it’s around 20% of the original retail price per item.
Fix Dementia Homecare survey
The Alzheimer’s Society survey is designed for a person with dementia, their carer or a close family member or friend. The responses will help to inform Alzheimer’s Society campaign work to improve the quality of homecare that people with dementia receive.
If you would like anything included in future bulletins then contact Marie, OPAAL’s Operations Manager at:  
Copyright © 2016 OPAAL (Older People's Advocacy Alliance), All rights reserved.

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