|Issue 2 / April 2014
Happy Spring!Letter from the Executive Director
Spring has finally sprung! The last days of winter were very busy here at The Centre. Between Epilepsy Awareness Month in March, Purple Day on March 26, and our annual Gala on April 5, things were abuzz. What an amazing amount of spirit and support was demonstrated throughout the region. Thank you to all the volunteers, donors, supporters, businesses and schools for all your support! Be sure to see the photos from the Gala and Purple Day!
We’re conducting member surveys throughout the region and they’re providing us with great information about how we can serve you better and what type of support and information you would like. Your input matters and we will take it into consideration as we plan for the near and distant future. If you haven’t yet completed the survey, please take a few moments to fill it out on Survey Monkey.
I hope you enjoy the April edition of Spikes & Waves!
Griffin: A Bright Spark Plug of EnergyLiving with Epilepsy
Five-year-old Griffin seems shy at first, but once he’s comfortable he immediately becomes everyone’s best friend. His father calls him a “bright spark plug of energy.” Griffin loves to dance, laugh, play, and hug those he cares about. The challenge for his family is finding recreational programs that meet his needs.
Living with epilepsy since he was two and a half, Griffin also faces speech and general developmental delays. His parents John and Joy had trouble finding a program that offered a safe and welcoming environment where counsellors could take the time to concentrate on listening to him so they understood what he said. That all changed when they found Game On, Epilepsy Support Centre’s recreational program for children with neurological conditions.
When Griffin started attending Game On, he found an environment in which he felt secure meeting other children. John admires that the program has quickly fostered a sense of independence in Griffin, and he believes his son quickly felt at home with the genuine encouragement from the patient staff and volunteers. According to John, “Game On became Griffin’s gym full of joy”; a place for him to enjoy the freedom and confidence the comes from playing in a safe and supportive environment. While Griffin is running around playing games and having fun, his parents also know that he is improving his physical literacy skills, social skills, and his independence. They love Game On, too. They see that the benefits of his participation are immeasurable.
Becky and Brayden
Purple Day Heroes
Volunteers Becky Boere and her son Brayden have spearheaded Purple Day activities at Holy Rosary Catholic School in Wyoming, Ontario, since 2008. The first year, Becky recalls, the students were asked to wear purple and were given purple freezies donated by the Boere family. By 2010, “the school was totally on board and the kids went crazy with purple,” she says. A fundraiser bake sale held that year allowed the Boere’s to buy a book on epilepsy to donate to every library in Lambton County’s Catholic school board.
Fast-forward to 2014 and the Purple Day tradition exploded in a riot of colour when all 133 of Brayden’s classmates at Holy Rosary Catholic School assembled in the gym dressed in purple. This year’s fundraiser raffle brought in $600, which was donated to a local family whose son has been diagnosed with epilepsy. In total, the Boere’s have raised approximately $2,000 through their Purple Day efforts, which has been used to build awareness and help others who have a family member living with epilepsy.
Brayden inspired Becky to raise awareness about epilepsy. As a young boy, she says he had a “rough year of daily seizures,” including drop attacks. He needed to wear a helmet at school and take 12 pills a day to control his seizures. Brayden was weaned off the medications when he was 7 years old, and his last known seizure was in junior kindergarten. It’s an amazing turnaround for the Boeres who were told by doctors that Brayden would have degenerative epilepsy.
“Dr. Craig Campbell called us back for a visit when Brayden was in Grade 2, and he just looked at us in amazement and said 'If I did not see this from beginning to end, I never would have believed it.' He said, 'Brayden, buddy, you are a medical miracle.'”
Free Monthly Webinar Series about Epilepsy
Epilepsy Ontario launched a free monthly webinar series about epilepsy. Upcoming webinars will focus on epilepsy treatments (Thursday, April 24) and memory (Thursday, May 15).
|Regional News & EventsLondon-Middlesex
Social Coffee Club
First Thursday of every month
May 1, June 5
1:00 - 3:00 pm
Epilepsy Support Centre
690 Hale Street
Please RSVP to (519) 433-4073 or firstname.lastname@example.org before each meeting if you plan to attend.
Rick Berg Invitational Golf Tournament
Thursday, May 22
Forest City National Golf Club
16540 Robin's Hill Road, London
Lunch: 11:00 am
Shot gun start: 12:30 pm
Dinner: 6:30 pm
Golf and dinner: $200/person
For more information or to register, check out our main Rick Berg Invitational Golf Tournament page
SAVE THE DATE: Special Film Screening Event
One the Edge: Living with Epilepsy
Thursday, June 12
Salon A, London Convention Centre
300 York Street, London
Doors open: 6:00pm
Opening Remarks: 6:30pm
Screening of Film: 6:45pm
Panel Discussion: 7:40pm
RSVP to Megan Boyle at email@example.com or 416-597-3478
Monday, April 21
100 Keil Drive, Chatham
1:00 – 3:00 pm
$7/person includes 2 games of 5 pin and shoes
RSVP by Friday, April 18
Thursday, May 8
St. Clair College Capitol Theatre
238 King Street West, Chatham
4:00 – 6:00 pm
RSVP by Thursday, May 1
Club Movie Day
Monday, May 18
Chatham Galaxy Cinemas
St. Clair Street (Across from Super Store), Chatham
Time: Afternoon - Exact time to be determined
Cost: Ages 3-13: $5; Ages 14+: $6.50
This price is based on 20 people minimum. Please feel free to invite friends and family. The more people we have the better the price.
RSVP by Thursday, May 15
Monday June 16, 2014
Golf & Fun Centre
936 Charing Cross Road (Across From T-Bones), Chatham
6:00 - 8:00 pm
RSVP by Friday, June 13
Family Support Group
Meet Donna Pammer, Epilepsy Support Centre’s Executive Director
Wednesday, April 16
Local 195 Hall
3400 Somme Avenue, Windsor
Tuesday, April 22
United Way Windsor-Essex
300 Giles Blvd. East
Wednesday, March 26 - 6:00 – 8:00 pm
Thumbs Up for Epilepsy and Info Table
June 7 & 8, 2014
11:00 am - 5:00 pm
Booth 87 on Christina Street (between Lochiel and Cromwell streets)