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Welcome to Epilepsy Southwestern Ontario's E-blast. Your quarterly newsletter from Epilepsy Southwestern Ontario covering the latest in epilepsy news from our clients, our agency, and around the world.
May 2018

Welcome, Spring!Letter from the Chief Executive Officer

With the arrival of Spring and the start of a new fiscal year, comes a revitalized sense of hope and a renewed energy!  We have some exciting projects that are on our radar for the upcoming year that we are happy to announce:

The Ontario Trillium Foundation has invested $263,400 in our new School to Community program. We know that early intervention can improve the social and emotional skills of children with epilepsy and change their future. We also know that this can only be achieved through community collaboration, which is the goal of School to Community. If we continue to focus solely on treating the seizures, we will not solve many of the social difficulties in adulthood, as seizure remission does not reliably enhance social outcomes.

The Westminster College Foundation has invested $9,289 to help us implement a Youth Division of ESWO.  This initiative intends to reduce social isolation for youth living with epilepsy by empowering them to design, create and implement a youth led division of ESWO to rally together and take action towards something we care about: raising epilepsy awareness and decreasing the associated stereotypes and stigma. We are excited to design our new youth lounge with the generous $8,000 donation from the Trillium ROOTS Community Fund!

Our final piece of news is that we are finally settled into our new office and would love you to stop by for a coffee and a tour.

Hope to see you soon!

Warm Regards,


Michelle Franklin

Chief Executive Officer
 

CJ DeadmanLiving with Epilepsy

CJ is a spunky, life-loving 11 year old boy. He has a contagious giggle and enjoys playing games like ‘What Time Is It Mr. Wolf’ or floor hockey.  Experiencing his first seizure at four months old, doctors and nurses rushed him into the ER right away. After experiencing an induced coma for six days, CJ was diagnosed with epilepsy and it was determined that he experienced Generalized Tonic Clonic seizures. The biggest concern for his family was how having one or two seizures a week would affect his development. It can take him many days to walk again or sometimes to remember what has recently happened after a seizure.

CJ’s parents have indicated that CJ looks forward to ESWO’s programming and that Game On has been amazing for CJ; he knows every Saturday he gets to join fellow kids that don’t judge him and will help him be a kid.  Wacky Wednesday Summer Camp empowers him to build relationships with his peers and have a great summer experience. He is such a joy to counselors, creating bonds that will be remembered by all.


Epilepsy Information Day
Second Annual, March 2018
Thank you to all guest speakers, participants, volunteers and sponsors who participated in our 2nd Annual Epilepsy Information Day, which was held on March 3, 2018. We were fortunate to host an exciting full-day conference featuring relevant topics for educators, caregivers, families and those living with epilepsy. Special thanks to our event sponsors:
 

     
&
LivaNova Canada - VNS Therapy
 

Epilepsy Awareness Month
Wrap Up and Thank You, March 2018

A big thank you to our community members, local businesses and schools who got involved in raising awareness about epilepsy, seizures and seizure first aid in as many ways as possible. Once again, many took the time to get involved and we would like to thank all those involved.

You truly make a difference!

To view a list of this years contributors, visit our website.

2018 Game Show Gala
Event Summary
Epilepsy Southwestern Ontario would like to thank all guests, sponsors, donors and volunteers who participated in our Game Show Gala! We are happy to announce that this year's Gala surpassed our goal, raising over $30,000!! Proceeds from the event will help us to further our mission by providing education and support services.
  • View photos from this year's event.
  • For a recap of the event, please visit our website.
Thank you to our 2018 event sponsors:
     
 

Mark it in your calendars, next year's gala will be held on Saturday, April 6, 2019.
We look forward to seeing you there!
 

Put Epilepsy on the Ballot
Epilepsy Education Support

Epilepsy Ontario and community epilepsy agencies are launching a campaign to get Epilepsy Education in the next budget! Please take a moment and visit  http://epilepsyontario.org/advocacy/election/ 
to find out how you can help! 

If you're not sure what to put in the feedback section to politicians,  we would suggest sharing your personal story and how ESWO has helped you and your family, or you could include something similar to:

"Ontario’s epilepsy community needs community education and support programs. Programs that help people understand their epilepsy and how to manage it, reduce seizure frequency and unnecessary hospital visits, and help them live well in the community need to be a priority for the next government. Ontario’s Community Epilepsy Agencies are already providing these programs with limited resources and need provincial funding to maintain and expand programs for people living with epilepsy. Please help support the 95,000 people living in Ontario with epilepsy." 


Wacky Wednesday Summer Camp
Watch for Registration


This safe and inclusive summer camp is available for children ages 4-12 with epilepsy, and their siblings. Wacky Wednesdays is a place where children can participate in a variety of physical activities, arts and crafts, educational field trips and make friends. Camp will take place on seven consecutive Wednesdays in July and August. The first camp day is Wednesday July 11. Camp runs from 9:00am - 4:00pm with before and after care available for an extra fee. 

Watch for registration! 
Calling All Summer Camp Volunteers
  • We are recruiting volunteers ages 16+ with energy and enthusiasm! You must have a valid police record check, and attend training. 
  • If interested in volunteering, please connect with kidscamp@epilepsyswo.ca

Calendar Raffle
July Fundraiser
ESWO will be hosting a calendar raffle for the month of July. Purchase your calendar to help support ESWO. Tickets are eligible for redraws, (so you have a chance to win every day of the month!) and will be available shortly, please contact bailey@epilepsyswo.ca to reserve yours.

New Office
ESWO Head Office
We are now settled into our new office space at 797 York St. London. Please feel free to stop in and visit us!



Union Gas Helping Hands
Cheque Presentation

Special thanks to Union Gas Helping Hands for helping us make our new office space feel like a home! Employees from Union Gas volunteered their time to help set up our office space, including putting together desks and organizing materials. Additionally, the group donated $1,000 towards our new head office.
Thank you for your support!

Renewed Computer Technology
Affordable Computers for Low Income Individuals
Renewed Computer Technology is a charity that provides low income individuals with affordable ownership of quality renewed computers, ready to use software & learning modules all in one package. Contact Nicola at nicola@epilepsyswo.ca for more information about how ESWO can connect eligible individuals. 
For more information check out there website: http://www.rcto.ca/default.asp
  
The Olser Epilepsy ScholarshipOpen To Students Who Are Living With Epilepsy
The 2018 Osler Epilepsy Scholarships are awarded to graduating high school students across Ontario who are living with epilepsy.
Welcome Back, Reem!
Our Office Administrator, Reem is back after taking maternity leave with Fares. We’re excited to have her back!

Regional News & EventsLondon-Middlesex

Family Support Group

YEP! - New Participants
  • We are recruiting for our next session of YEP! This exciting engagement program for youth aged 12-18 living with epilepsy or seizure disorders and runs for six consecutive weeks.
  • Please contact nicola@epilepsyswo.ca to register for our next session
AGM & Member BBQ
  • Save the Date - Wednesday, August 22 at 4:00pm
  • Graham Family Eco Park
  • Join us for a Member BBQ and social, with AGM to follow; More information visit our website.
  • Please RSVP to info@epilepsysupport.ca
5th Annual Seize the Day Walk

  • Save the Date - Sunday, September 30, 2018
  • New location: Graham Family Eco Park
  • For more information visit our website. If you’re interested in sitting on this year’s committee, please contact bailey@epilepsyswo.ca
Chatham-Kent

Donna L'Ecuyer Foundation Support

ESWO is grateful to announce the recent support from Donna L’Ecuyer Foundation in the amount of $20,000 towards our Clinic To Community© Program in Chatham-Kent region.

More Information here.

Tabitha's Farewell

"I am sad to be leaving such a wonderful organization and have struggled with finding the words to say my farewells. I have had the privilege to get to know so many of you and your families, and for this I am very grateful! I’ve learned a lot in my four and a half years with ESWO and have been inspired on a number of occasions. Game On, Wacky Wednesdays and Clinic To Community© are dear to me, and I am proud to see how much the programs and the people involved in them have grown.

I admire the strength, resiliency and hope that you bring to others – keep being #EpilepsyWarriors!"

Welcome Amanda

As sad as we are to see Tab go, we are thrilled that Amanda has agreed to take the ropes in Chatham/Kent. Amanda has been an Epilepsy Educator in the Windsor area, so is fully trained and experienced. Please send her a note to introduce yourself at amanda@epilepsyswo.ca or give her a call at 519.365.5131. 

Windsor-Essex

Medical Cannabis Presentation

  • Tuesday, May 15, 2018 from 6:30pm - 8:30pm
  • Location: United Way
Support Group Meeting
  • Third Tuesday of every month  6:30pm - 8:30pm
  • Next Meeting Dates:
    • June 19, 2018
    • July 17, 2018
    • August 21, 2018
  • Location: United Way
  • Please RSVP to christine@epilepsy.swo.ca
2nd Annual Seize the Day Run/Walk

  • Save the Date - Sunday, September 16th, 2018
  • Location: Vollmer Culture Recreation Complex
  • For more information visit our website.
Third Party

Beat the Blues

  • Thank you to the Haggarty's and Beat the Blues for raising $2,500 for our organization and helping raise awareness about epilepsy. 
  • The third party event Beat the Blues was held on Saturday, February 3, 2018 at Tony's Banquet Hall.
Epilepsy SWO Gala Dinner & Silent Auction
  • On April 13, 2018 a group of business students from Fanshawe College hosted a Gala at Safron’s Restaurant in support of ESWO. They were able to raise $1,500 to help support our agency. Thank you to all of your hard work!

Copyright © 2014 Epilepsy Southwestern Ontario. Charitable Registration No.: 11890-0802-RR0001

Epilepsy Southwestern Ontario
797 York Street, Unit 3 | London, ON, N5W 6A8 | Canada

Tel: 519.433.4073 | Fax: 519.433.4079
Windsor Tel: 519.890.6614
Sarnia Tel: 519.330.0416
Chatham Tel: 519.365.5131

michelle@epilepsyswo.ca