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Welcome to Epilepsy Southwestern Ontario's E-blast. Your semi-monthly newsletter from Epilepsy Southwestern Ontario (formerly Epilepsy Support Centre) covering the latest in epilepsy news from our clients, our agency, and around the world.
October 2016

Fall ChangesA note from the Executive Director

We are excited to report that through our Clinic to Community program, we have met 300 new families throughout our service region thus far! As a direct result, we are hosting “Let’s Connect, Fall Open House” this Saturday, October 22, beginning at 10am. This will provide a great opportunity for new families to meet our staff team and hopefully develop connections among one another. We hope to see everyone there!
 
Over the last few months, there has been lots of changes within the agency! Three newly married staff (Reem, Bailey and Tabitha), two babies on the way (Reem and Jeremy), a new agency name (Epilepsy Southwestern Ontario) and....we are moving! We have not yet determined a new location, but we promise to keep everyone in the loop as we tackle our newest adventure.

Kind regards, 

Michelle Franklin
Executive Director
 

Karen McLeodLiving with Epilepsy

Karen was diagnosed with both epilepsy and agenesis of the corpus callosum at age four. She grew up experiencing discrimination due to inaccurate attitudes and perceptions at a young age. Even in kindergarten, her teacher expressed fear and a lack of empathy when stating “thank goodness that kid never had a seizure in my class”. During her school experience, Karen had to advocate for herself to attend the High School of her choice, as once again her abilities were questioned.

As an adult, Karen has had difficulties finding an employer willing to offer equal opportunities. Discrimination in the workplace forced Karen to leave two positions, and she was refused a position by management because she was “disabled”. Despite this, Karen persevered and has fortunately found an employer in Windsor who knows about her medical conditions and still provides a safe and welcoming environment. She has been employed there for the last 14.5 years, and has been seizure free for over 16 years.

After seeing how negatively people living with epilepsy can be treated, she says that she realizes “we’ve come a long way, but still have a long way to go.” It’s Karen’s hope that epilepsy awareness will continue to grow and attitudes and perceptions will change to benefit those diagnosed.

 

Seize the Day 2016Thank You

 A huge thank you to everyone for their contributions and continued support of our 3rd Annual Seize the Day Event.

Together, over 300 participants raised $40,000 towards Epilepsy Southwestern Ontario's support and education programs! We are excited to report that many new families joined the event this year in honour or memory of someone affected by seizures & epilepsy, and we well surpassed our goal.

A special thank you to this year's Event Sponsors: EMCAD Consulting Engineers and Sunovion Pharmaceuticals. We would also like to thank our Event Contributors: Investors Group South London, Old Navy and 98.1 Free FM.
        


Special Shout Out to Team Oke for their amazing efforts, their team alone raised over $14,000!
For a complete list of all event supporters and more event wrap up information, please visit: www.epilepsysupport.ca/seizetheday2016/seize-the-day-2016-thank-you


MechandiseCheck out our updated merchandise!

With the colder weather coming and Christmas just around the corner, be sure to visit our website or stop in at The Centre and check out our merchandise items. Currently, featured items include our Christmas ornaments ($5, pictured), handmade Granny's Mittens ($20, pictured) and handmade Social Club scarves ($15). With a number of our items being handmade, they are all unique with a variety of styles and colours available - you never know what item you'll fall in love with! 

Visit our merchandise page for more items and prices: www.epilepsysupport.ca/resources/merchandise

SUDEP Awareness

Sudden Unexpected Death in Epilepsy (SUDEP) refers to the death of an adult or child with epilepsy, where no cause of death could be found. October 23 provides an opportunity for individuals and families to help spread the word about SUDEP. There are a number of great initiatives for this year's SUDEP Awareness Day. 

Read More

Regional News & Events

Epilepsy Information Day

  • Save the date: March 4, 2017, 9:00am - 4:30 pm
  • Conference for educators, caregivers, supporters and those living with epilepsy. Will include guest speakers and information sessions.
  • Please complete our Survey to help us determine the relevant topics you're interested in! Click here to complete the survey.

London-Middlesex

Let's Connect- Fall Open House

Holiday Party

  • Wednesday, December 14, 6:00pm - 8:00pm
  • Redeemer Lutheran Church, 1 Frank Place, London
  • $15 for adults / $8 for children. Must reserve tickets in advance, please contact Reem@epilepsysupport.ca by December 7.
  • There will be a special visitor for the kids too! 


Chatham-Kent

Alternative Therapies Information Night

  • Thursday, October 20, 6:00pm
  • Topics include: medical marijuana, ketogenic diet, surgery pathways and more!
  • Free session, register in advance by contacting tabitha@epilepsysupport.ca

Windsor-Essex

Fitness Carousel - Crossfit workout

  • Saturday, October 22, 10:00am
  • Windsor Crossfit, 3950 North Service Road East, Windsor
  • Limited spots, register in advance by contacting janelle@epilepsysupport.ca
 Fitness Carousel - Tai Chi
  • Saturday, November 5, 10:30am
  • 1367 Ouellette Ave, Windsor
  • Wear comfortable clothing and flat shoes (runners).
  • Limited spots, register in advance by contacting janelle@epilepsysupport.ca
 Fitness Carousel - Yoga session
  • Saturday, November 12, 11:00am
  • Breathe Pilates and Fitness Studio, 420 Kildare Rd #101, Windsor
  • Free yoga session (yoga mat provided, wear comfortable clothing)
  • Limited spots, register in advance by contacting janelle@epilepsysupport.ca
 Support Group Meeting (Guest Speaker)
  • Tuesday, November 15, 6:30-8:30pm
  • United Way, 300 Giles Blvd East, Windsor
 Support Group Meeting (Holiday Festivities)
  • Saturday, December 3, 5:00-8:00pm
  • United Way, 300 Giles Blvd East, Windsor
     
Third Party Events

Special Thank YouVillage of Komoka - Annual Party in the Park

The Village of Komoka and their Annual Party in the Park surpassed their goal and raised $3,258.10! 

Thank you for the generousity displayed by those who came out to the wonderful event, which included face painting, live acoustic entertainment and a wonderful fireworks display.
We look forward to next year on September 2, 2017!

McGregor Mug Run
Thank you to those in Windsor who attended the 5th Annual McGregor Mug Run. With a portion of the proceeds being donated to Epilepsy Southwestern Ontario, this event included a chicken dinner fundraiser and a 50-50 draw at the Mug Run and International Beer Fest. With your support, $2,829 was raised to support those living with epilepsy. Thank you!


Copyright © 2014 Epilepsy Southwestern Ontario. Charitable Registration No.: 11890-0802-RR0001

Epilepsy Southwestern Ontario
690 Hale Street | London, ON, N5W 1H4 | Canada

Tel: 519.433.4073 | Fax: 519.433.4079
Windsor Tel: 519.890.6614
Sarnia Tel: 519.330.0416
Chatham Tel: 519.365.5131

michelle@epilepsysupport.ca