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Welcome to Epilepsy Support Centre's E-blast. Your quarterly newsletter from Epilepsy Support Centre covering the latest in epilepsy news from our clients, our agency and around the world.
November 2015

Happy Autumn!Letter from the Executive Director

Epilepsy Support Centre continues to grow!  Since our last Spikes and Waves Newsletter, we have added a new staff member to our team, four staff have purchased new homes and three staff are now sporting shiny new diamond rings! So proud of our team (both personally and professionally) and greatly admire their passionate dedication to spreading epilepsy awareness and working to improve the quality of life of people living with epilepsy.  We are inspired to do what we do by the stories you share!  Judy Theriault recently posted this motivational message of courage and strength on Facebook, and has given permission for me to share it with you.  I think her comments say it all!

“After a seizure....under my blankets hiding from the world sometimes I find myself falling into the "why me's", why can't this just go away.... And then I think back on the past 5 years and I am reminded of each time I over came it, each time I picked myself up from a floor or the middle of a store, or a sidewalk, and I know then that I will overcome this one to, I have been given the chance each time to get up, to fight back.....so many are not. I am so thankful for everyday....even the bad ones. I may never understand "why me", but talking about it and spreading awareness helps me, because 5 years ago I knew nothing, never gave epilepsy a thought.... I have an amazing team beside me , I have met wonderful people along the way and have learnt a lot about myself. I know each of my friends with epilepsy will understand , we all have those bad times, but always remember you are not alone, no matter how lonely it can feel, we are all in this fight together !!”
 
A big thank you to Judy for allowing us to share! I think she has said it all!  You are not alone! Please enjoy this edition of Spikes and Waves Newsletter!

Warm Regards,

Executive Director

 

Jessica WachterLiving with Epilepsy

Jessica Wachter (pictured left) was diagnosed with epilepsy when she was 19 years old in her second year of college for veterinarian technician. Jessica experienced complex partial seizures, which neurologists were able to pinpoint to her right temporal lobe through the placement of subdural electrodes on her brain to map out electrical activity. A successful candidate for surgery, she underwent a lobectomy to have the portion of her brain where seizures were originating from, surgically removed. Prior to her surgery Jessica was a very shy individual, however, she believes her personality changed as a side-effect of the procedure and she became very outgoing. She has become passionate about learning, her journey opening her mind to the mysteries of the brain and inspiring her to spread awareness of epilepsy.

Jessica first learned about Epilepsy Support Centre during her stay in the epilepsy unit at University Hospital in London, where she was introduced to a woman in her church who was an active member of The Centre. Jessica herself is now actively involved, becoming a part of the Peer-to Peer Network and participating in events such as fundraising barbecues, galas and the annual Seize the Day. She has made a number of amazing friends who understand her experiences and share their own. For Jessica, The Centre is a second home where she can help work to spread knowledge through awareness. She believes that epilepsy needs advocacy, so that education can be available to the community ensuring that people with seizures and epilepsy can live successful lives.

Jessica most recently stated:  "If I could take a magic wand and make epilepsy go away, I wouldn't and here's why:  Epilepsy has shown me how strong people can be... I was amazed at the people that supported and led me through this journey. I also made strong, amazing friendships with people who I couldn't imagine my life without today."


Share your epilepsy journeyDo you have a story you'd like to share with us? Would you like to be featured in our newsletter? Please contact Bailey: bailey@epilepsysupport.ca

 

What is the Impact of Epilepsy in Ontario?Epilepsy Infographic

The data in the infographic is from Brain Disorders in Ontario: Prevalence, Incidence, and Costs from Health Administrative Data. View the full report here
 

Murder Mystery FundraiserOxford County Holiday Fundraiser

Who doesn't love a good mystery? Epilepsy Support Centre invites you to be a part of our first ever fundraiser in Oxford County featuring a Murder Mystery Dinner on Friday, December 11, 2015. 

This holiday dinner fundraiser will include a cash bar, silent auction, dinner and a holiday themed murder mystery show put on my Murder for Hire. All guests are encouraged to dress in holiday attire! Consider joining us for your staff Christmas party and reserve a table together. 

Location: Goff Hall, Woodstock, ON
Ticket cost: $50 per ticket

For more event information, including how to purchase your tickets, please visit our website.


Seize the Day RunThank you for your support

On behalf of Epilepsy Support Centre- 2nd Annual Seize the Day 2015 Event, we would like to personally thank you for your contributions and continued support of Epilepsy Support Centre, our special events and programs.

Together, approximately 175 participants raised over $22,000 towards The Centre's support and education programs. We are excited to report that many new families joined the walk this year in honour or memory of someone affected by seizures & epilepsy, and we surpassed our goal of $20,000. Job well done everyone!!!

Please visit our website for special thank yous and event photos.

 

Clinic to Community
 

Our Clinic to Community website is now open to everyone! 

Educators are available to speak one-on-one with you and your family about seizures and epilepsy. Strategy sheets are also available online.

Contact you local educator for more information or visit www.clinictocommunity.ca

Regional News & EventsPublic Education Services for all Regions
Epilepsy Support Centre would like to inform you of a range of services aimed at educating students, teachers and staff about the brain, seizures and seizure first aid.
 
1. Every year, Epilepsy Support Centre offers an engaging and interactive program, Thinking About Epilepsy presentation, for Grade 5 students (and split classes) that addresses curriculum expectations for Grade 5 Science Classes in Ontario set out by the Public School Board. The presentation is 45mins to 1 hour.
 
2. Epilepsy Support Centre Educators offer a Teacher/ School Staff In-Service to school staff about epilepsy, seizure first aid, medication side effects, and learning strategies for children with epilepsy. Educational videos and PPT are used. The presentation is 30 mins, not including questions/ discussion.
 
3. Epilepsy Support Centre will help develop an individualized safety plan to address your child’s seizure-related safety concerns and work with the school to ensure every child with epilepsy is accommodated as needed. We will meet with teachers and before and after school care teams.
 
4. Epilepsy Support Centre offers classroom presentations adapted from our Grade 5 program to educate children from junior kindergarten through high school about epilepsy, seizure first and to make the classroom a welcoming environment. Time is adjusted based on grade.
 
5. Epilepsy Awareness Month- is MARCH! If your school or class would like to plan an event, please let us know by December, 2015. We provide free education information/ posters, tattoos and more! Check out our Purple Nation 2015 page to see last years events and lists of participants: http://epilepsysupport.ca/purplenation2015.


London-Middlesex

Client Christmas Party

  • December 10, 2015 from 6:15 - 8:15 pm
  • Redeemer Lutheran Church, 1 Frank Place, London
  • Featuring a Christmas dinner catered by Out N Back Catering and a visit from Santa Claus for all children in attendance.
  • Dinner cost: $15/adult and $7.50/child - Subsidies available. 
  • RSVP to reem@epilepsysupport.ca or call 519-433-4073

Social Coffee Club

  • For November and December - Fridays 1-3 pm
  • You must RSVP your attendance via telephone or email to Jeremy or Reem by 11am the morning of the meeting

Adult Fitness Program

  • Every Monday and Wednesday, 3-4 pm
  • Classes are adaptable to all age groups and physical activities, led by a certified fitness professional and are 100% seizure safe.

Family Fun Night

  • First Tuesday of the month, from 6:30-8:30 pm.
  • Informal support meeting in a relaxed social gathering with a variety of activities; participation is 100% free.
  • Centrally located in downtown London with free parking.

Family Seizure Disorder Support Group Meeting

  • Third Tuesday of each month, 6:30-8:30 pm
  • Structured support group involving presentations, discussion topics and sharing of experiences.
  • Centrally located in downtown London with free parking.
For information about any of our London & area programs, please contact jeremy@epilepsysupport.ca or 519-433-4073


Oxford County

Family Fun Night 

  • Tuesday, November 24, 6-8 pm
  • Oxford County Administration Building, 21 Reeve St., Woodstock
  • Informal meeting for people affected by seizures & epilepsy. Participation is free and pizza is provided.
  • Please RSVP to Jeremy: jeremy@epilepsysupport.ca 


Chatham-Kent

Holiday Family Day 

  • Holiday Bowling Party for December 12th at 2:00 pm 
  • Bowlerama, 100 Keil Drive, Chatham 
  • Express interest to Tabitha by November 6, 2015

Windsor-Essex

Holiday Pottery Painting
  • Saturday, November 21, 2-4 pm
  • Pottery and Palettes Studio, 13458 Tecumseh Rd. E, Tecumseh
  • $12 +hst per piece
  • Please sign up in advance


Third Party Events & Fundraisers
Special Thank You to the Following:

Annual Labour Day Celebration
Rob and Tracy Jonkhans and family hosted the 1st Annual Labour Day Celebration in Komoka, ON in honour of their 7 year old daughter who has been diagnosed with epilepsy. The family fun event included fireworks, facepainting, cotton candy, live entertainment and much more! Donations were collected and over $2,500 was donated to The Centre. Thank you to the whole family for their hard work!

Copyright © 2014 Epilepsy Support Centre. Charitable Registration No.: 11890-0802-RR0001

Epilepsy Support Centre
690 Hale Street | London, ON, N5W 1H4 | Canada

Tel: 519.433.4073 | Fax: 519.433.4079
Windsor Tel: 519.890.6614
Sarnia Tel: 519.330.0416
Chatham Tel: 519.365.5131

michelle@epilepsysupport.ca

 







Chatham/Kent
Sarnia/Lambton
Oxford County


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