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Welcome to Epilepsy Support Centre's Eblast. Your semi-monthly newsletter from Epilepsy Support Centre covering the latest in epilepsy news from our clients, our agency, and around the world.
May 2015

Happy Spring!Letter from the Executive Director

 

Wow! It has been 9 months since my return to The Centre, and it seems like it was just yesterday!  Work does not seem like work when you are doing what you love! As always, I feel honoured to be part of such a wonderful staff team striving to improve the quality of life for people living with epilepsy, their families and our communities! 

We have been fortunate to receive an Ontario Trillium Foundation grant to implement a program called Clinic to Community.  This funding allows us to integrate health care and community epilepsy services in our region.  We are providing information sessions to health care teams that focus on the psychosocial and social needs of their patients with seizures, and partnering with them to set up a referral system to link patients with epilepsy and seizure disorders to community epilepsy services.  We are meeting people with epilepsy as soon as they are diagnosed and are able to provide them with the information and support they need to live healthy, vibrant lives.  Clinic to Community is an exciting project that is both expanding and enhancing our services.  

In March 2015, six of our volunteers received an Ontario Volunteer Service Award from The Ministry of Citizenship, Immigration and International Trade.  Aira Guerrero, Amit Sharma, Jacob Hoffman, Mackenzie Smith and Negassi Gebremedhin each received a Youth Volunteer Award, and Bob Harvey was honoured with a 10 Year Volunteer Service Award.  I truly believe that volunteers make the world go round! A big shout out to all of our volunteers who generously give their time and talent to Epilepsy Support Centre! We are very grateful for each and every one of you.

Warm Regards,

Executive Director

 

Dean PodburyLiving with Epilepsy

Shortly after moving from London to Victoria, British Columbia, Dean Podbury experienced a seizure which put him into a coma for three weeks. When he awoke, Dean had lost an extensive amount of weight and was missing four years of his memory. The seizure had additionally affected his ability to communicate and to understand music. Dean spent a month in ICU and the neurology department of his Victoria hospital, undergoing a grueling recovery process.

Dean returned home to London, faced with new obstacles. His memory has been one of his greatest challenges: not only has Dean had to recover his missing four years, but he now has difficulty retaining memories of longer than a few months. Employment has also been a struggle, with Dean facing difficulty in balancing the stress of work and the challenge of seizures at his previous job.  Epilepsy Support Centre has helped Dean face these challenges head on, helping him find new employment and connecting him with others living with epilepsy.  By sharing stories with other members, Dean has come to a better understanding of epilepsy and his own personal experience with seizures. Dean has become a very active volunteer at Epilepsy Support Centre, assisting in the London Support Group as a convener, as well as a strong participant in a number of our adult programs.

More on Dean's story.


Game On

Physical Literacy and Your Child

To an observer, Game On just looks like fun and games. To the children with neurological conditions that have been participating, it’s so much more! Game On uses children’s games and activities to help children develop fundamental movement skills, social skills and self-confidence. It teaches children movement skills in a way that they can learn at their own pace and apply skills to activities that they enjoy.
 
The success from the first year of Game On was celebrated on March Break with the Mini Parapan Am Games. This one day multi-sport event took place at Saunders Secondary and we had 25 children, over 45 volunteers and many community organizations participate in the event, including: Thames Valley Children’s Centre, Autism Ontario, the YMCA, Boys and Girls Club, Byron Soccer Club, London Track and Field Club, Parasport Ontario, Heroes Circle Karate, Ontario Wheelchair Sports Association, Western University and more! The event was generously supported by the London Insurance Brokers Association, and Ontario Sport and Recreation Communities Fund.
 
The program is currently being evaluated through the Ontario Brain Institute and a team of hard working researchers from the Centre for Community Based Research. Many stakeholders from the Game On program such as volunteers, parents and staff have formed a research steering committee to guide the research process. We hope that this research process provides the community with an understanding of the impact that Game On has on our families and the community!
 
We are very pleased to share that there will be another session of Game On starting May 9, 2015. For more information or to register your child, please contact Tabitha at tabitha@epilepsysupport.ca, call 519-433-4073 or visit www.epilepsysupport.ca/services/gameon 

 

Purple Nation 2015Epilepsy Awareness Month and Purple Day Celebrations

In Canada, Epilepsy Awareness Month is celebrated in March; worldwide with Purple Day for Epilepsy on March 26 as the highlight. This March, Epilepsy Support Centre and community members celebrated through a variety of events, fundraisers and awareness initiatives across our entire service area.

Thank you to those who got involved with a campaign or fundraiser. Epilepsy Awareness Month is an excellent opportunity to begin a discussion about epilepsy, educate the public and break down the stigma of seizure disorders. Special thanks to one of our major donors, Domino's Pizza of Canada Ltd. for supporting our school campaigns in the London and Windsor regions. 

Visit our Purple Nation page to see who participated in Purple Day for Epilepsy 2015, as well as to find coverage for Purple Day in the News: www.epilepsysupport.ca/purplenation2015



Summer CampSeizure-safe Children's Camp
Wacky Wednesdays is back, every Wednesday in July and August, starting July 8! This summer will offer tons of fun, learning and friendship. Registration fees will fit all budgets and siblings are welcome. We are welcoming two Therapeutic Recreation Interns from Brock University, as well as a summer student who will be this year’s camp coordinators. Camp this year will take place at Knollwood Park Public School in East London, located at Cheapside and Gammage, and will offer many exciting day trips. Stay tuned for more details! Registration will open June 1. Please email tabitha@epilepsysupport.ca to be added to registration mailing list.
 

Member BBQ and AGM

We are excited to announce that we are hosting our Annual Member BBQ and our Annual General Meeting together this year. Save the date: Wednesday, June 24, 2015 at 5:00pm. Further information will be posted to our website in the near future!
 

Regional News & EventsLondon-Middlesex

 Starry Night - Spring Gala 2015

Thank you to this years guests, sponsors, donors and volunteers for making our Starry Night Gala a great success! Epilepsy Support Centre hosted our Annual Spring Gala on April 11, 2015 at a new venue - Brookside Banquet Centre. We are happy to announce that we raised $27,000 which will help us to provide a network of services that educate, support and build community awareness.

Special thank you to our two new title sponsors: Mauro's on Erie (Dinner Sponsor) and Gore Mutual Insurance Brokers (Entertainment Sponsor). In addition, thank you to Culinary Catering for providing a delicious meal and for helping us to make this event a success.
 
To see a complete list of all of our valued supporters, please visit www.epilepsysupport.ca/starry-night-gala-2015
           

Social Coffee Club

  • Now meeting on a weekly basis. Alternating Thursdays and Fridays from 1-3 pm
  • Epilepsy Support Centre - 690 Hale Street, London
  • Starting in early May, we will be participating in various outdoor activities in our neighbourhood, with an emphasis on engagement and healthy living.
  • Please contact Jeremy for more information at jeremy@epilepsysupport.ca

Adult Fitness Program

  • Every Monday and Wednesday, 3-4 pm
  • Classes are adaptable to all age groups and physical activities, led by a certified fitness professional and are 100% seizure safe.
  • Contact and register with Jeremy at jeremy@epilepsysupport.ca or 519-433-4073

Family Fun Night

  • New! Starting June 2, 2015.
  • The first Tues of the month, from 7-9 pm.
  • Informal support meeting in a relaxed social gathering with a variety of activities; participation is 100% free.
  • Centrally located in downtown London with free parking.
  • Contact Jeremy at jeremy@epilepsysupport.ca or 519-433-4073 to find out more.

Family Seizure Disorder Support Group Meeting

  • Third Tuesday of each month, 7-9 pm
  • Structured support group involving presentations, discussion topics and sharing of experiences.
  • Centrally located in downtown London with free parking.
  • Contact jeremy@epilepsysupport.ca or 519-433-4073 for more information.
Community Garden Program
  • We are on the cusp of getting our Community Garden planted and thriving! We are always looking for new members to join our group and help turn our project into a success! 
  • Gardening sessions are on a drop in basis depending on your schedule, and planning meetings are twice a month in the evenings.
  • Email jeremy@epilepsysupport.ca for more information.


Chatham-Kent

Adult Support Group

Family Social Event
  • Sunday, May 30, 2015 at 1:00 pm
  • Crock-A-Doodle Pottery Studio, 170 McNaughton Ave W #2
  • For $15, each painter gets to choose from a selection of items to paint.
  • Please RSVP to tabitha@epilepsysupport.ca by May 20, 2015.

Windsor-Essex

On April 20, 2015 we held a Spring Pasta Fundraiser at East Side Mario's. We fed 75 people and raised just shy of $500. A big thank you to everyone who came out! 

Meet, Play, Laugh

  • May 19, 2015 at 6:30pm
  • United Way in Windsor, 300 Giles Blvd E.
  • Come to chat, play board games or just hang out
  • Contact jyll@epilepsysupport.ca for more information
Meet, Play, Laugh Pottery Night
  • June 16, 2015 at 6:30pm at United Way, 300 Giles Blvd E.
  • Hosted by Pottery and Palettes
  • Come create some hand painted pottery for $10 + tax ($11.30) per person! Please bring cash. 


Sarnia-Lambton

Friends and Family Fun Night

  • May 15, 2015 from 5:30 pm - 7:30pm
  • Temple Baptist Church, 1410 Quinn Dr, Sarnia
  • Games, crafts and fun for the whole family, including a potluck dinner. Bring a dish to share or pay a small fee $5/person or $15/family.
  • RSVP to Julie at julie@epilepsysupport.ca Please indicate any allergies.



Third Party Events & Fundraisers
Upcoming Events


Fifth and Final Rick Berg Invitational Golf Tournament

  • Thursday, May 28 - shotgun start at 1:00 pm
  • Glen Abbey, Oakville, ON
  • Golf and dinner: $280/golfer, $1,000/foursome
  • Visit our website for more information on how to register.

Kick it up for Kenz Fundraiser
  • Saturday, May 30, 2015 Valerie Cull and friends will host the second annual Kick it up for Kenz Fundraiser in memory of MacKenzie Jordan Scott. 
  • Players London, 1749 Dundas St, London, ON
  • Enjoy musical performances, food and a silent auction at this year's event.
  • Tickets are $60. Please visit our event page for more information.

Copyright © 2014 Epilepsy Support Centre. Charitable Registration No.: 11890-0802-RR0001

Epilepsy Support Centre
690 Hale Street | London, ON, N5W 1H4 | Canada

Tel: 519.433.4073 | Fax: 519.433.4079
Windsor Tel: 519.890.6614
Sarnia Tel: 519.330.0416
Chatham Tel: 519.365.5131

michelle@epilepsysupport.ca

 







Chatham/Kent
Sarnia/Lambton
Oxford County


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