Thank you to everyone who came to learn and collaborate at our first virtual Global Kidney Cancer Summit. A special thank you to all the speakers for their informative presentations and discussions. A full conference report will be available early in the New Year on our website.
Please remember all the presentations are available to view on the conference platform until the end of the year. They will then be made available to all conference attendees on our website.
While we could not meet in person this year, we enjoyed connecting with the kidney cancer community virtually and learning from all the informative discussions and presentations that took place. Thank you to everyone who participated.
We will be announcing the dates in the new year for our 2021 Global Kidney Cancer Summit.
Extension Alert – IKCC’s Global Patient Survey will be open until 5 January 2021
The survey extension will give more patients and caregivers the opportunity to share their experiences and insights. Collecting these learnings will help identify geographic variations and highlight best practices and unmet needs related to access to care, quality of life and involvement in clinical trials.
With this information, IKCC and local kidney cancer organisations will better understand the challenges patients and caregivers face and focus on initiatives that will ultimately help improve the lives of people living with kidney cancer.
Complete the survey now: The 15-minute survey can be found here, available in 13 languages and variants.
Thank you to everyone who has participated and shared the survey to-date! We’re pleased to let you know there have already been more than 100 respondents from Canada, France, India, Japan, South Korea, UK and the United States. IKCC will produce a Country Report for any country with a minimum of 100 responses, in addition to the Global Report that looks at trends, themes, and geographic variations.
If you have any questions about the Global Patient Survey, please email Rebecca Cubbage at firstname.lastname@example.org
To find out more about the Global Patient Survey, please visit our website.
Save the Date: World Kidney Cancer Day 2021
Save the date for the 5th World Kidney Cancer Day on 17 June 2021. Join patients, families, friends, carers, health professionals, researchers and local kidney cancer organisations from around the world to come together to raise awareness and reduce the global burden of kidney cancer.
Most Medicines Agencies around the world have been working hard to assess and approve treatments and vaccines for COVID-19 this year. However, in the pipeline for renal cell carcinoma (RCC) are combination treatments such as cabozantinib plus nivolumab, pembrolizumab used as an adjuvant treatment for locally advanced RCC and new treatments, such as atezolizumab plus cabozantinib that show promise for non-clear cell RCC.
The coronavirus pandemic has completely changed the way we work, with virtual meetings, telemedicine, and online conferences. This year, both the American Society of Clinical Oncology (ASCO) (29-30 June 2020) and the European Society of Medical Oncology (ESMO) Annual Congress (19-21 September 2020) went virtual. The IKCC had a virtual booth at both conferences. We submitted the above poster presentation on Cancer Care During COVID-19: Data from 157 Patient Organisations to ESMO. Thank you to the many of you who attended and provided valuable insights during the virtual discussions and Q&As.
After each congress, the IKCC Medical Advisory Board prepares a brief summary of research findings. Feel free to use, translate, or link to items in the summary that may be of interest. See highlights of the latest kidney cancer research presented at ASCO 2020 Virtual Scientific Programme and ESMO Virtual Congress 2020 on the IKCC website.
Welcome to our new affiliate organisation
This section profiles the important work to support kidney cancer patients of a new affiliate to join IKCC. Please see the IKCC website for a full list of organisations in our global network. Please get in touch if you would like to contribute to the next newsletter.
AsPaFa: Renal Cancer Patients and Families Association
We would like to welcome AsPaFa to the IKCC, bringing the total number of affiliated organisations to 46. AsPaFa are an association founded by kidney cancer patients in Spain. They have been supporting kidney cancer patients and their relatives since 2015. In addition to the support they provide to Spanish kidney cancer patients and their families, they also support patients in other Spanish-speaking countries across Latin America through social media. Visit the AsPaFa website for further information.
Most of us are still suffering from the effects of the COVID-19 pandemic; there are backlogs of diagnoses, treatments are still disrupted and clinical trials are only just starting to open up. The wellbeing of cancer patients while we try to return to a normal life remains a big concern for many patient organisations.
Because the risk and spread of COVID-19 varies considerably between individual countries and individual patients, we recommend that you follow your local Government advice to keep safe over the coming months. Please see the IKCC COVID-19 cancer-related resources page for reliable, evidence-based information about COVID-19.