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Quality of life for All Newsletter #2
"Adults with severe disabilities are above all just people like us"
Final video of the European ERASMUS + project on Quality of Life For All. #QoL4All
QoL4ALL Final Conference
Assessing and promoting the quality of life of adults with severe disabilities

On June 29th, the project partners met online at the #QoL4ALL Final Conference: ‘Assessing and promoting the quality of life of adults with severe disabilities’ which marked the end of this project. The aim of the Quality of Life for All project is to improve the skills of adult education professionals working with people with profound and severe disabilities in the promotion of their quality of life. 

The event took place in two sessions. In the morning session, participants were able to learn more about intervention programs in adult education in regard to the promotion of their quality of life through the analyses and outcomes of this project. The second session introduced a presenation on ethics and inclusion of people with disabilities and panel discussion with key speakers on quality of life, services and disabilities and debate with participants.


The feedback from the event was very positive. Participants were satisfied with the organisation and content of the virtual conference. 

>> Click here to see the presentations
Multiplier events
Josefsheim Bigge, Germany
 
Under the title "Ways to assess and promote quality of life for people with severe disabilities“, the Josefsheim Bigge held a multiplier event at the Josefshaus in Lippstadt.
 
For almost 100 years, the Josefshaus in Lippstadt-Lipperode has been offering people with physical, learning, sensory and severe disabilities support and participation in living and working environments. People of all ages are supported there to realize their opportunities and possibilities to participate in society. The focus is on the individual person with his or her ideas and goals. The services are continuously adapted to their needs and life planning.

The half a day workshop was addressed to Case Manager and professionals who work directly with adults people with severe disabilities. Due to the relaxation of the Corona restrictions, the seminar could be held in presence form in Lipperode. The training objectives and contents were selected in advance depending on the training needs of the participants.

The seminar structure was divided into 3 parts. In the first part of the training, the Quality of life approach, it´s dimension and the San Martin Scale were explained. Good practice of interventions to improve (aspects of) QOL for persons with severe disabilities were presented in the second part. In the third part recommendations for using and implementing the training program in the organisation of the Josefshaus Lipperode werde given. This further training promoted and strengthened the professional competence of the specialists in the care and promotion of people with severe disabilities.

The feedback from the participants was also very positive without exception and the interest in the presentations and good practice guide was extremely high. During the workshop there was expressed for continuing and deepening the initial cooperation between the Josefsheim Bigge and Josefshaus Lipperode for additional further training on Quality of life. The managers and professionals asked for support to implement the quality of life assessment and an educational strategy for the promotion of quality of life. Some desired additional training modules were identified. Also an internal pedagogical forum on this QOL subjects should be initiated.
APPC, Portugal

On July 8, 2021, between 9:30 am and 1:00 pm, the Workshop “Promotion of the Quality of Life of People with Severe Disabilities” was held online through the zoom platform, within the scope of the european project «Quality of Life for All», in which 51 professionals participated from several Portuguese institutions who work with people with disabilities.

This multiplier event was intended to promote a space for learning and sharing among participants, with special emphasis on sharing the best transnational practices to promote the quality of life of citizens with disabilities. The Workshop was divided into four parts. In the first part, a general presentation of the Erasmus+ «Quality of Life for All» (QOL4ALL) project was made. The second part presented the quality of life model underlying the project, explored the San Martín scale for assessing the quality of life of people with significant disabilities and shared the quality of life profile of people with severe disabilities who participated in the project. The third part presented an education program to promote the quality of life of adults with severe disabilities, aimed at professionals who work directly with these people. Finally, in addition to disseminating transnational good practices to promote the quality of life of people with disabilities, a practical exercise was carried out with the participants as part of the process of selecting best practices to promote quality of life.

Feedback from participants was very positive, as well as the interest in the presentations and the best practices guide was extremely high. The participants felt motivated to share their own professional experiences in which they review themselves and to seek recommendations to improve their professional practices to promote the quality of life of the people they work for.
Instituto Don Calabria, Italy

On August 30th 2021, between 2.30 p.m. and 5.30 p.m., the Italian final multiplier event “Quality of life for all” was held at Centro Polifunzionale Don Calabria in Verona. More than twenty external professionals attended to the final workshop whose aims were explaining and sharing the project, the good practises and the meaning of the concept of quality of life. It was clarified that the project concerned the quality of life of adults with severe disability. The workshop was divided into four parts. 

First of all, the meaning and the structure of the Erasmus+ «Quality of Life for All» (QOL4ALL) project were presented and the importance of the moments of sharing experiences during the various meetings was highlighted. It was also asked in this part what a good practise is and how to define it; in the following sections this aspect was analysed. In the second part, the S. Martin Scale and the eights dimensions of QOL were explained. The third section of the event presented the PCP (person centred planning) as an instrument useful to lead the planning and the implementation of individualised supports based on the person’s specific needs and wishes. Eventually, a speech about augmentative and alternative communication was made focusing on practical and transferable ways to communicate based on the awareness and the importance of space, time and actions. 

Feedback from participants was positive and some of them asked some questions. They showed interest in the use of the S. Martin Scale. The last remark underlined how the project is stimulating: it leads to reflect on how much groups of support are important during the pandemic and to widen our horizons to new practise and methods in the taking care of the persons and, more specifically, in the taking care of the persons with severe disability. 
Project Consortium
Led by the Cerebral Palsy Portuguese Association of Faro (APPC Faro) as project coordinator, the consortium of the project is composed by: the European Platform for Rehabilitation (Brussels, Belgium), Josefsheim gGmbH (Olsberg, Germany), Instituto Don Calabria (Verona, Italy) and Centro San Rafael – Fundación San Francisco de Borja (Alicante, Spain).
What is Quality of Life for All (QoL4ALL)?
 
QoL4ALL is an Erasmus + project that aims to improve the skills of adult education professionals working with people with profound and severe disabilities in the promotion of their quality of life.

QoL4All has been developed from the idea that no matter our condition or situation we all have the right to have quality of life. Being aware and respecting the rights and ethical dilemmas of people with severe disabilities is crucial for staff members, carers and family members to contribute to their quality of life.

QoL4ALL will analyse for, a period of two years, successful practices in the European Union regarding the quality of life of adults with severe and profound disabilities. It will promote the qualification and professionalism of service providers in the quality of life of these target group. The project will also aim at increasing the offer of intervention programs in adult education in regard to the promotion of their quality of life.
What is quality of life for people with severe disabilities?
 
Given the evolution of the concept of disability over the last decades, based on the principle of inclusive education and with the ratification of the United Nations International Convention on the Rights of Persons with Disabilities, a new perspective is inherent with this population, implying a greater dignification of their quality of life and a greater commitment to a theoretical / practical framework of reference that is adequate to the fulfillment of the values of citizenship and inclusion of these citizens as full members of the society they live in.

The concept of quality of life is used universally to evaluate the results of policies, practices and personal evolutions. In 2002, Schalock and Verdugo described quality of life as a desired state of personal well-being that: (a) is multidimensional; (b) has universal properties and properties related to culture; (c) has objective and subjective components; and (d) is influenced by personal characteristics and environmental factors.


Education focusing on the quality of life of people with disabilities refers to a system of multidimensional and multidisciplinary nature that respects diversity, individuality and development, aiming at a culture of cooperation and collaboration problem solving, maximizing the potential of each individual with disability and providing an improvement in the educational response.

People with severe and profound disabilities may have marked limitations in their body functions and structures (by reference to the ICF, the International Classification of Functioning, Disability and Health) putting at risk their development, leading them to experience serious difficulties in the process of learning and participation in the various contexts in which they are inserted.
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Copyright © 2021 QoL4ALL, All rights reserved.

Contact us:
Ana Luisa Sousa, Project Coordinator, APPC, analuisasousa@appc-faro.org.pt

Newsletter Editor, Alicia Gomez Campos, EPR, agomezcampos@epr.eu
Newsletter contributors: All project partners.

The European Commission support for the production of this publication does not constitute an endorsement of the contents which reflects the views only of the authors, and the Commission cannot be held responsible for any use which may be made of the information contained therein.

 



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